Our Commitment
Hope for GNEM is committed to protecting your privacy. As a new non-profit organization, we collect minimal information and use it solely to support our mission of helping families affected by GNE Myopathy.
Information We Collect
Contact Information: Name and email address when you reach out to us
Website Usage: Basic analytics to understand how our site is used
Voluntary Information: Any details you choose to share about your experience with GNE Myopathy
How We Use Information
- Respond to your inquiries and provide support
- Send updates about our programs and resources
- Improve our website and services
- Connect you with relevant community resources
Information Sharing
We do not sell, trade, or share your personal information with third parties. We may share anonymized information to help advance research and awareness about GNE Myopathy.
Contact Us
If you have questions about this privacy policy, please contact us at info@hopeforgnem.org